Article

This study evaluated multilevel surgery and rehabilitation with
functional measures and health related quality of life (HRQOL) of children and
youth with cerebral palsy (CP).
In addition this study evaluated parent's
satisfaction with care. METHOD: A prospective single-subject study with AB design
and 2-year follow-up, included 11 children between 8 and 18 years old with CP,
Gross Motor Function Classification System I-III. Visual analyses were used to
present physical function with Physical Cost Index (PCI). Descriptive statistics
were used to present number of children with a clinically important change in
Gross Motor Function Measure (GMFM), self-reported walking ability, and HRQOL
with child health questionnaire (CHQ). RESULTS: PCI showed a trend of lower
energy cost during gait in six children and GMFM was unchanged for 10 children
and improved for one child. Walking ability was improved in 10 children. Gait
distance increased in all 11.
Both physical and psychosocial dimensions of CHQ
improved in six of nine (two missing data). Expectations of outcomes were
fulfilled in seven and partly fulfilled in four. Satisfaction with care was fulfilled in 10 of 11. CONCLUSION: Self-reported walking ability improved after
multilevel surgery and intensive rehabilitation. This result was partly supported
by lower energy cost and improved HRQOL. Expectations and satisfaction were
fulfilled for the majority of children.

Langue : ANGLAIS