Article

The transition to adulthood is extremely difficult for individuals
with disabilities. We sought to explore the specific issue of transition to
adult-oriented health care in a Canadian context. METHODS: We conducted
semi-structured individual interviews with 15 youth and 15 adults with cerebral
palsy, spina bifida, and acquired brain injuries of childhood, and their parents
(n = 30). Respondents discussed their health care services, their experience with
clinical transition, and contributing factors. We analyzed the transcripts using
qualitative methods. RESULTS: All participants identified challenges in
transition, including: lack of access to health care; lack of professionals'
knowledge; lack of information and uncertainty regarding the transition process.
Two solutions were identified: early provision of detailed information and more
extensive support throughout the clinical transition process. DISCUSSION: The
challenges of clinical transition were universal. More extensive information and
support is needed during transition to ensure an efficient move to appropriate
adult-oriented health care.

Langue : ANGLAIS