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Constantly changing lives : experiences of people with multiple sclerosis

H
LEXELL EM; LUND ML; IWARSSON S
AM J OCCUP THER , 2009, vol. 63, n° 6, p. 772-781
Doc n°: 144361
Localisation : Documentation IRR
Descripteurs : AE3 - SEP, KB3 - ACTIVITES DE LA VIE QUOTIDIENNE Url : http://ajot.aota.org/issue.aspx#issueid=930101

The purpose of this study was to gain an enhanced understanding of how people
with multiple sclerosis (MS) experience their engagement in occupations. We
interviewed 10 people and then analyzed the data gathered using the constant
comparative method of grounded theory. The findings encompassed the core category
"essentials of a constantly changing life", showing that along a continuum of
change, the participants experienced a decreasing engagement in occupations that
forced them to continuously struggle to maintain engagement. This struggle
changed them and required them to construct a different life than before. Our
findings suggest that professionals working in MS rehabilitation need to broaden
their repertoire of interventions relevant to conditions in clients' social
environment, with the intention of influencing those occupations that are
individually most meaningful. Occupational therapists should focus on the
client's engagement in occupations and its consequences for the client's life and
self-identity.

Langue : ANGLAIS

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