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Access of children with cerebral palsy to the physical, social and attitudinal environment they need

COLVER AF; DICKINSON HO; PARKINSON K; ARNAUD A; BECKUNG E; FAUCONNIER J; MARCELLI M; MCMANUS V; MICHELSEN; PARKES J; THYEN U
DISABIL REHABIL , 2011, vol. 33, n° 1, p. 28-35
Doc n°: 150767
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2010.485669
Descripteurs : AJ23 - PARALYSIE CEREBRALE

The UN Convention on the Rights of Persons with Disabilities requires
states 'to ensure to persons with disabilities access, on an equal basis with
others, to the physical environment, transportation, information and
communications.' We explored whether this convention was respected for disabled
children in Europe. METHOD: One thousand one-hundred and seventy-four children
aged 8-12 years were randomly selected from population-based registers of
children with cerebral palsy in eight European regions. 743 children joined the
study; one further region recruited 75 children from multiple sources.
Researchers visited these 818 children and administered the European Child
Environment Questionnaire, which records parents' perceptions of availability of
the physical, social and attitudinal environment needed in home, school and
community. Multilevel, multivariable regression related child access on these
domains to their impairments and socio-demographic characteristics. RESULTS:
Children with more impaired walking ability had less access to the physical
environment, transport and social support they needed than other children. They
also experienced less favourable attitudes from family and friends. However,
attitudes of teachers and therapists were similar for children with all levels of
impairment. The access of children, across all impairment severities, to their
needed environment showed significant variation between regions (p </= 0.0001),
some regions consistently providing better access on most or all domains.
CONCLUSION: European states need to substantially improve environmental access
for disabled children in order to meet their obligations under UN Conventions. In
some regions, many environmental factors should and realistically could be
changed. Legislation and regulation should be directed to making this happen.
Local environmental planners and health and social service providers should
listen carefully to parents to address mismatches between policy intentions and
parental experience.

Langue : ANGLAIS

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