Article

The available tools used to describe childhood dystonia tend to offer a
monodimensional view of the person functioning, which may overlook significant
changes induced by treatment. We applied the International Classification of
Functioning, Disability and Health (ICF) perspective to the description of the
clinical picture of a dystonic child treated with deep brain stimulation (DBS) to
get a more global representation of the treatment effect.
METHOD: An 8-year-old
child with secondary dystonia was selected within the institutional program for
advanced treatment of pediatric dystonia as a candidate for bilateral
implantation of electrodes into globus pallidus and chronic stimulation. The
International Classification of Functioning, Disability and Health -children and
youth (ICF-CY) based project and program format was used by the rehabilitation
team to define the clinical picture, rehabilitation objectives, and to verify the
outcome. RESULTS: The rehabilitation project and program included 39 ICF
categories: 14 body functions, two body structures, 18 activities and
participation, and five environment. On such basis we defined the individualized
specific rehabilitation objectives and we checked for clinical changes after DBS.
CONCLUSION: The ICF-CY format provides a complete and balanced profile of
functioning in secondary dystonia treated with DBS and it could offer a novel
perspective for outcome evaluation.

Langue : ANGLAIS