Article

Environmental factors (EF) have an important role on Tourette's symptoms
and the same factors can be decisive on the impact that the disease has on people
with Tourette syndrome (TS) daily life. The research was carried out by the
Neurological Institute Carlo Besta IRCCS Foundation with the principal objective
of describing the complete range of functional profiles of children with TS, to
define the functioning and the difficulties in social participation. The
research protocol was composed of the ICF-CY questionnaire, WHO-DAS II proxy
version, the Vineland Adaptive Behavior Scale and the Kidscreen questionnaires -
Quality of life (QoL) questionnaires for children and adolescents. The research
protocol involved a multidisciplinary team (medical staff, psychologist,
pedagogist). RESULTS: The children reported higher QoL's level than the QoL
attributed by parents. The Vineland scores reflected considerable difficulties in
socialisation. Through the EF analysis, this study highlights the facilitating
role of the immediate family and health professionals. CONCLUSIONS: Beyond the
clinical symptoms, this study points out that the therapeutic elements must be
identified by a change of environment, and not only in a child's adaptation
ability.

Langue : ANGLAIS