Article

The increasing survival of children and young people with congenital disabilities
such as spina bifida (SB) provides a challenge to health care systems globally
about how best to respond to the multitude of health, developmental, and
psychosocial needs of those affected by this complex disorder across the
lifespan, not just in childhood and adolescence. The goal of transition to adult
health care is to maximize lifelong functioning through the provision of quality,
developmentally appropriate health care that continues uninterrupted as the
individual moves from adolescence to adulthood. The objective of this article is
to outline the type of evidence we have around transition to adult health care in
young people with SB, and to identify what additional research evidence would
help inform the development of models of clinical care for young adults.

Langue : ANGLAIS