Article

Family caregivers provide essential support as stroke survivors' return
to community living, but it is not standard clinical practice to prepare or
provide ongoing support for their care-giving role. In addition, health care
professionals (HCPs) experiences with providing support to caregivers have not
been explored previously. The objectives of this qualitative study were to: (1)
explore the support needs over time from the perspective of caregivers, (2)
explore the support needs over time from the perspective of HCPs, and (3) compare
and contrast caregivers' and HCPs' perspectives. METHODS: A qualitative study
with stroke family caregivers (n = 24) and HCPs (n = 14). In-depth interviews
were audio taped, transcribed, and analyzed using Framework Analysis. RESULTS:
Three main themes emerged concerning: (1) types and intensity of support needed;
(2) who provides support and the method of providing support; and (3) primary
focus of care. These themes are discussed in relation to the TIR framework.
CONCLUSIONS: Caregivers' needs for support and the individuals most suited to
providing support change across the stroke survivor's recovery trajectory.
Changes to service delivery to better support caregivers may include: (1)
addressing caregivers' changing needs across the care continuum; (2) implementing
a family-centered model of care; and (3) providing 7-day per week inpatient
rehabilitation.

Langue : ANGLAIS