Article

OBJECTIVE: To describe patient-reported disability in primary brain tumours using
the International Classification of Functioning, Disability and Health (ICF); and
comparison with categories within the core sets for stroke and traumatic brain
injury. METHOD: A prospective community cross-sectional survey (n = 106)
following definitive treatment for primary brain tumours. Problems reported by
participants were linked with ICF categories using 'linkage' rules. Participants
rated 'activities and participation' and 'environmental factor' components of ICF
checklist (using qualifiers); and responses compared with categories within core
sets for stroke and traumatic brain injury. RESULTS: Participant mean age 51
years, median time since diagnosis 2 years; over a third had high grade tumours.
Participants considered 44 categories in 'activities and participation' and 16
categories (barriers) in 'environmental factors' as relevant (>/= 10% response)
using checklist. Reported problems included: Mobility, Domestic life, General
tasks/ demands; and Human made changes to environment. Although the linked
categories for brain tumour survivors were similar to those in the core sets for
stroke and traumatic brain injury, there was more commonality with the traumatic
brain injury core set. CONCLUSION: The existing comprehensive stroke and
traumatic brain injury core sets incorporate issues relevant to brain tumour
survivors in post-acute settings. Findings from this report will assist in
defining a future core set for brain tumour; the possibility however, of using a
single core set relevant to most long-term neurological conditions needs to be explored.

Langue : ANGLAIS