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Using palliative care in progressive neuromuscular disease to maximize quality of life

CARTER GT; JOYCE NC; ABRESCH AL; SMITH AE; VANDEKEIFT GK
PHYS MED REHABIL CLIN N AM , 2012, vol. 23, n° 4, p. 903-909
Doc n°: 160006
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1016/j.pmr.2012.08.002
Descripteurs : AB3 - PATHOLOGIE MEDICALE DES MUSCLES

This article discusses the role of palliative care in the treatment pathway of
patients with progressive neuromuscular disease (NDM), including amyotrophic
lateral sclerosis and Duchenne muscular dystrophy (DMD). People with severe NMDs
like DMD are now living much longer, well in to adulthood. This makes them
suitable for the medical model of palliative care. Yet palliative medicine is a
new area, especially for "adults" with DMD. Strategies for identifying the most
effective modalities to alleviate suffering in patients with an NMD receiving
palliative services and creating best practice standards in pain and symptom
management for this patient population are discussed.
CI - Copyright (c) 2012 Elsevier Inc. All rights reserved.

Langue : ANGLAIS

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