Article

Care home residents with multiple sclerosis (MS) are more physically
dependent than the average residents. However, little is known about their
quality of life (QoL). We investigated the experiences of residents with MS using
qualitative research methods and developed a conceptual model of QoL. METHODS:
Twenty-one people with MS (age range 43-80 years) residing in a range of care
homes were interviewed.
The interviews were transcribed verbatim and analyzed
using the constant comparative method. RESULTS: Four core model domains
identified were as follows: (i) What the care home means to the residents, (ii)
Self, (iii) Environment and (iv) Relationships. Some residents reported that care
homes can relieve the burden on family, address specific environmental issues
regarding safety and act as a form of social support. However, some reported
isolation and difficulties adjusting to life in the care home. Having access to
rehabilitation strengthened the feelings of independence within the care home.
CONCLUSIONS: QoL is a broad, multidimensional construct for residents with MS.
QoL measures for residents with MS should incorporate broad domains, including
environmental factors. The conceptual model highlighted several areas for
improving QoL of residents with MS, including more involvement of family members,
encouraging independence by providing access to rehabilitation and providing
support in the transition process.

Langue : ANGLAIS