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Predictors of needs for families of children with cerebral palsy

ALMASRI NA; O'NEIL M; PALISANO RJ
DISABIL REHABIL , 2014, vol. 36, n° 3, p. 210-219
Doc n°: 167688
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2013.783123
Descripteurs : AJ23 - PARALYSIE CEREBRALE, JL13 - HANDICAP ET FAMILLE

This study examined child, family and service characteristics that
are predictors of family needs for community, financial, family support and
services needs for families of children with cerebral palsy (CP). CP is a
non-progressive neurological condition caused by lesions in the central nervous
system resulting in limitations in motor function and associated co-morbid
conditions. Children with CP often require multiple health, rehabilitation, and
community services. PURPOSE: To identify risk and protective factors among
predictors of needed resources and services (i.e. community, financial, family
support) and to discuss implications for coordination of medical, rehabilitation,
and community services for children with CP and their families. METHODS:
Secondary data analysis was conducted with a national dataset (n = 441) of
mothers of children with CP. The average age of children was 10.7 years (SD =
4.5) and was distributed across the various Gross Motor Function Classification
System levels. Four logistic regression models were conducted to examine
predictive power of child, family and current service characteristics on needed
resources and services. RESULTS: Limited child gross motor function was a risk
factor (odds ratio (OR): 1.30-1.70) while perception of family-centered services
(FCS) was a protective factor (OR: 0.57-0.63) in having the needs met.
CONCLUSION: Mothers of children with CP who are able to walk, reported strong
family relationships, and perceived need-oriented and FCS expressed less needs
for community, financial, family support and services' resources needs.
Implications for service providers are provided.

Langue : ANGLAIS

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