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Developmental trajectories of social participation in individuals with cerebral palsy

TAN SS; WIEGERINK DJ; VOS RC; SMITS DW; VOORMAN JM; TWISK JW; KETELAAR M; ROEBROECK ME
DEV MED CHILD NEUROL , 2014, vol. 56, n° 4, p. 370-377
Doc n°: 168414
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1111/dmcn.12343
Descripteurs : AJ23 - PARALYSIE CEREBRALE

This study aimed to determine the developmental trajectories of social
participation, by level of gross motor function and intellectual disability, in a
Dutch population of individuals with cerebral palsy (CP) aged 1 to 24 years.
METHOD: As part of the Pediatric Rehabilitation Research in the Netherlands
(PERRIN+), 424 individuals with CP (261 males, 163 females; mean age [SD] 9y 6mo
[6y 2mo]; Gross Motor Function Classification [GMFCS] levels I-V [50% level I];
87% with spastic CP; 26% with intellectual disability) were longitudinally
followed for up to 4 years between 2002 and 2007. Social participation was
assessed with the Vineland Adaptive Behavior Scales survey. Effects of age, GMFCS
level and intellectual disability were analysed using multilevel modelling.
RESULTS: The developmental trajectories for individuals in GMFCS levels I to IV
did not significantly differ from each other. For individuals without
intellectual disability, the degree of social participation increased with age
and stabilized at about 18 years. These individuals reached social participation
levels similar to typically developing individuals. The trajectories were
significantly less favourable for individuals in GMFCS level V and individuals
with intellectual disability. INTERPRETATION: Intellectual disability is more
distinctive for the development of social participation than GMFCS level. The developmental trajectories will support individuals with CP and their families in
setting realistic goals and professionals in optimizing the choice of
interventions at an early age.
CI - (c) 2013 Mac Keith Press.

Langue : ANGLAIS

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