Article

The aims of this study were to (1) search the literature in order to
identify the challenges facing adolescents and emerging adults with epilepsy; and
(2) categorize these issues within both the framework of the International
Classification of Functioning, Disability and Health (ICF) and an empirical model
of quality of life (QOL) in childhood epilepsy.
METHOD: We systematically
searched PsycINFO, Ovid MEDLINE and Web of Science for studies reporting on QOL
and health identified in people with epilepsy aged 12 to 29 years. Studies were
limited to those that were published in the last 20 years in English, presenting
the patient perspective. Data were extracted and charted using a descriptive
analytical method. Identified issues were classified according to the ICF and QOL
frameworks. RESULTS: Fifty four studies were identified. Another 62 studies with
potentially useful information were included as an addendum. The studies
highlight a range of psychosocial issues emphasizing peer acceptance, social
isolation, and feelings of anxiety, fear, and sadness. INTERPRETATION: The ICF
and QOL constructs represent useful starting points in the analytical
classification of the potential challenges faced by adolescents with epilepsy.
Progress is needed on fully classifying issues not included under these
frameworks. We propose to expand these frameworks to include comorbidities,
impending medical interventions, and concerns for future education, employment,
marriage, dignity, and autonomy.
CI - (c) 2013 Mac Keith Press.

Langue : ANGLAIS