Article

Mixed (environmental scan, qualitative and semiquantitative).
OBJECTIVES: To develop a customizable patient and family education resource for
people with spinal cord injury (SCI). SETTING: SCI rehabilitation center
(Canada). METHODS: An environmental scan was conducted and stakeholder input
sought to generate a list of potential handouts and inform content development.
Staff members were recruited to draft handouts, which were later edited and
finalized by the project team. Hardcopies of handouts were placed in cabinets
throughout the rehabilitation center. Staff members were also trained/coached to
facilitate and promote usage; which was then tracked for 2 years. RESULTS: One
hundred and fifty-six potential handouts were identified; 83 deemed high
priority. Seventy-two handouts addressing patient organization, self-management
and community integration were finalized for phase 1. At inpatient admission,
patients receive a binder containing base materials. The binder is then
customized and populated with pertinent handouts throughout the rehabilitation
admission, and taken home at discharge for future reference. Handouts with the
highest usage covered medical management (for example, bladder, bowel and
pressure ulcers), mobility and activities of daily living. Handouts were also
helpful for staff training and orientation, as well as increasing the confidence
of staff providing education outside their immediate area of expertise.
CONCLUSION: Spinal Cord Essentials is a novel patient and family education
initiative comprised of practical handouts that address many important aspects of
SCI management. Handouts can be downloaded for free in four languages (English,
French, Chinese and Farsi) at www.spinalcordessentials.ca. Additional handouts
are planned for subsequent phases of the project.

Langue : ANGLAIS