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Development and assessment of a community follow-up questionnaire for the Rick Hansen spinal cord injury registry

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NOREAU L; COBB J; BELANGER LM; DVORAK MF; LEBLOND J; NOONAN VK
ARCH PHYS MED REHABIL , 2013, vol. 94, n° 9, p. 1753-1765
Doc n°: 168690
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1016/j.apmr.2013.03.006
Descripteurs : AE21 - ORIGINE TRAUMATIQUE, JQ - CIF Url : http://www.archives-pmr.org/issues

Article consultable sur : http://www.archives-pmr.org

OBJECTIVE: To develop a comprehensive community follow-up questionnaire for
participants enrolled in the Rick Hansen Spinal Cord Injury Registry (RHSCIR).
DESIGN: Development and preliminary assessment of measurement properties
(reliability and validity) of instruments used during a community follow-up and
aligned with the International Classification of Functioning, Disability and
Health (ICF). SETTING: General community setting. PARTICIPANTS: People with
spinal cord injury (N=50) living in the community. INTERVENTION: Not applicable.
MAIN OUTCOME MEASURES: A comprehensive follow-up questionnaire, referred to as
the RHSCIR Community Follow-up Questionnaire Version 2.0 (CFQ-V2.0), includes 8
instruments. Four new instruments were developed, 2 existing instruments were
modified, and 2 previously published instruments were included. RESULTS: Intra-
and interrater reliability statistics (Gwet's AC1) support the measurement
properties of the new and modified instruments. Correlations between new and
existing instruments and between groups based on the severity of injury support
the construct validity of the secondary complications and person-perceived
participation instruments. CONCLUSIONS: The RHSCIR CFQ-V2.0 is a comprehensive
community follow-up questionnaire that aligns to the ICF. Initial study results
suggest that it covers all relevant aspects of community living, and the
measurement properties are promising.
CI - Copyright (c) 2013 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS

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