Article

With the aim of describing variability in the long-term outcome of quality of
life after neurosurgically treated pediatric traumatic brain injury, mostly
self-reports of 21 individuals with mild or moderate/severe injury were gathered
using Mayo-Portland Adaptability Inventory in telephone interviews 13 years
aftyer injury. A majority of the participants reported brain injury-related
problems. The median outcome on Mayo-Portland Adaptability Inventory was mild to
moderate limitations. The variation within the moderate/severe group varied
between relatively good outcome and moderate/severe limitations. Concentration,
irritability, fatigue, and transportation were reported as the most problematic
areas, whereas self-care was reported as well functioning. Societal participation
appeared to be the best functional domain in this Swedish study. Examples of
individual reports of the life-situation at various outcome levels were provided.
Variability in outcome is large within severity groups, and research may gain by
addressing both outcomes of the individuals and groups. Objective questions of
outcome should be accompanied by questions of actual functioning in everyday
life. To ensure long-term support for quality of life for those with remaining
dysfunction after pediatric traumatic brain injury, healthcare systems should
implement systematic routines for referral to rehabilitation and support.

Langue : ANGLAIS