Article

PURPOSE: To investigate, using the McMaster Toronto Arthritis patient preference
disability questionnaire (MACTAR), disabilities most important to improve in
Swedish patients with rheumatoid arthritis (RA) and to compare these with the
pre-defined activities in the International Classification of Functioning (ICF)
comprehensive core set for RA and the Stanford Health Assessment Questionnaire
(HAQ). Also to categorize patient preference selected disabilities using the ICF,
to correlate the MACTAR score to RA core set measures and to evaluate the
MACTAR's test-retest reliability. METHODS: 45 patients with RA (median (md) age
59 years, diagnosis duration md 10 years) were included. Assessments included
disease activity score (DAS28), timed-stands test (TST), shoulder function
assessment (SFA), visual analogue scale for pain (VAS), HAQ, patients' global
assessment of well-being (PGA) and the MACTAR. RESULTS: 58 disabilities were
identified of which 17 were identified by at least 5 patients. 47% of them were
represented in the Comprehensive ICF RA core set and 53% in the HAQ. 16/17 were
categorized in the ICF activities and participation component. Correlations
between the MACTAR and other measures were: DAS28 (rs -0.65), TST (rs -0.19), SFA
(rs 0.38), VAS (rs -0.61), HAQ (rs -0.51) and PGA (rs -0.61). Weighted kappa was
0.59. CONCLUSIONS: Half of the disabilities patients with RA identified by use of
the MACTAR are not evaluated in the Comprehensive ICF core set for RA or the HAQ.
MACTAR has moderate test-retest reliability. MACTAR can be considered to be used
in addition to traditional RA outcomes and may potentially improve clinical
assessment of patients with RA. IMPLICATIONS FOR REHABILITATION: RA has an impact
on personal life areas. The MACTAR helps identify individual disease-related
disabilities of importance to improve. The MACTAR provides an opportunity for
individualized goal-setting in rehabilitation and can thus promote adherence in
rehabilitation. MACTAR may potentially improve clinical assessment for patients
with RA.

Langue : ANGLAIS