Article

There is currently no consensus on a definition of participation that
describes experiences and challenges of people with stroke. This meta-synthesis
aimed to identify, appraise and synthesise qualitative research on stroke
survivors' views of their experiences of social participation. METHODS: Ten
electronic databases were searched for relevant qualitative studies in English
from January 2001 and ending September 2011. Searching was extended to grey
literature, hand searching journals, checking references and contacting authors
of included studies. Two independent reviewers extracted data and assessed
methodological study quality. A meta-ethnographic approach described by Noblit
and Hare was used to synthesise findings. RESULTS: Eleven articles met the
inclusion criteria. Five main themes were identified: (1) change and disruption;
(2) perceived magnitude of individual barriers; (3) pursuing personal choices;
(4) building individual confidence and (5) evaluating personal meaning.
CONCLUSION: The ability of the person to accept their stroke-related problems and
adapt their behaviour and attitude by using active decision-making and
self-management skills are central factors to social participation post stroke.
This synthesis contributes an important addition to the conceptual understanding
of social participation relevant to people with stroke within the UK.
Implications for Rehabilitation Social participation post stroke appears to be a
dynamic, complex and continuous individual process, and a personalised longer
term approach to rehabilitation would be beneficial. Rehabilitation should be
focussed on what is most meaningful to the person following their stroke.
Professionals can do this by using questions which explore what stroke survivors
want to do; what they perceive to be the significant barriers, and what skills
and supportive networks are needed. Our findings emphasise the importance of
rehabilitation practitioners supporting stroke survivors' to engage with
meaningful self-selected social activities and the importance of stroke survivors
having the freedom and autonomy to set their own goals within rehabilitation. The
person's ability to adapt their behaviour and attitude by being positive,
hopeful, determined, resilient and courageous is an essential part of pursuing
their self-selected valued activities. Acknowledging and encouraging the
importance of these behaviours and attitudes should be promoted in
rehabilitation.

Langue : ANGLAIS