Article

We compared health-related quality-of-life (HRQOL) perceptions of
children with celiac disease (CD) with those of their parents to determine
whether their leisure participation differs from that of children without CD and
whether relationships exist between leisure participation and HRQOL. METHOD:
Children with CD and their parents completed a disease-specific HRQOL self-report
questionnaire, the Celiac Disease DUX. These children and matched controls
without CD completed the Children's Leisure Assessment Scale (CLASS). RESULTS:
Parents perceived HRQOL significantly more negatively than did children. No
significant group differences were found in leisure participation. However,
specific CLASS food-related activities and HRQOL significantly correlated.
CONCLUSION: Hearing the child's voice in addition to the parents' is important in
determining the HRQOL of children with a chronic condition. Findings contribute
to understanding of CD in the context of participation and well-being and can
lead to development of occupational performance-based assessments and
interventions for children with CD.
- Maladie auto-immune
- Enfant

Langue : ANGLAIS