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A qualitative exploration of self-reported unmet need one year after stroke

SHANNON RL; FORSTER A; HAWKINS RJ
DISABIL REHABIL , 2016, vol. 38, n° 20, p. 2000-2007
Doc n°: 183130
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2015.1107784
Descripteurs : AF21 - ACCIDENTS VASCULAIRES CEREBRAUX

Stroke survivors consistently report longer-term problems after stroke,
suggesting their needs are not being met. We developed a questionnaire to
identify stroke-survivor unmet needs. Preliminary questionnaire testing showed
that despite residual impairment, nearly one third of respondents reported no/low
unmet need. This qualitative study aims to gain insight into why stroke survivors
report low/no unmet needs. METHOD: People who self-reported zero or one unmet
need were purposively sampled and semi-structured interviews were conducted with
10 participants. Identification and management of current problems were discussed
and thematic analysis was undertaken. RESULTS: Participants did not report having
unmet need. Despite this, all participants identified current issues or problems.
Living with problems while reporting no/low unmet need is explained through:
acceptance of changed circumstances; making comparisons with other people and circumstances; valuing pride, determination or independence; and viewing issues
in the context of their expectations and experiences of services. Additionally,
all participants were receiving some support. CONCLUSIONS: Self-identification of
unmet needs is complex. Further investigation could explore the factors which
enable stroke survivors to appropriately identify and experience no unmet needs,
and whether these could be applied to reduce unmet needs of others. Implications
for Rehabilitation Despite self-reporting no/low unmet need, survivors of stroke
may still be experiencing difficulties in their daily lives.
Stroke-survivor-identified low unmet need is influenced by complex factors
including: acceptance; expectations of services; and comparisons with other
people, which Health and Social Care professionals have a role in understanding.
Health professionals could assess unmet need by using tools as a guide, supported
by individual conversation. Factors which enable some stroke survivors to
appropriately identify and experience no/low unmet need could be further
explored, and considered as strategies to reduce unmet needs of others.

Langue : ANGLAIS

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