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Patients' perspective on surgical intervention for Dupuytren's disease - experiences, expectations and appraisal of results

ENGSTRAND C; KVIST J; KREVERS B
DISABIL REHABIL , 2016, vol. 38, n° 26, p. 2538-2549
Doc n°: 183370
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2015.1137981
Descripteurs : DD853 - MALADIE DE DUPUYTREN

PURPOSE: To explore patients' perspectives on surgical intervention for
Dupuytren's disease (DD), focusing on patients' appraisal of results, involving
previous experiences, expectations and patient characters. METHOD: The
participants were 21 men, mean age 66 years, scheduled for DD surgery.
Qualitative interviews were conducted 2-4 weeks before surgery and 6-8 months
after surgery. The model of the Patient Evaluation Process was used as
theoretical framework. Data were analyzed using problem-driven content analysis.
RESULTS: Five categories are described: previous experiences, expectations before
surgery, appraisal of results, expectations of the future and patient character.
Previous experiences influenced participants' expectations, and these were used
along with other aspects as references for appraisal of results. Participants'
appraisal of results concerned perceived changes in hand function, care process,
competency and organization, and could vary in relation to patient character. The
appraisal of results influenced participants' expectations of future hand
function, health and care. CONCLUSIONS: Patients' appraisal of results involved
multidimensional reasoning reflecting on hand function, interaction with staff
and organizational matters. Thus, it is not enough to evaluate results after DD
surgery only by health outcomes as this provides only a limited perspective.
Rather, evaluation of results should also cover process and structure aspects of
care. Implications for Rehabilitation To improve health care services, it is
important to be aware of the role played by patient's previous experiences,
expectations as well as staff and organizational aspects of care. Knowledge about
patients' experience and view of the results from surgery and rehabilitation
should be established by assessment of care effects on health as well as
structure and process aspects of care. Evaluation of structure and process
aspects of care can be done by using questions about if the patient felt listened
to, received clear information and explanations, was included in decision-making,
and their view of waiting time or continuity of care. Improving health care
services means not only providing the best treatment method available but also
developing individualized care by ensuring good interaction with the patient,
providing accurate information, and working to improve the structure of the care
process. Before treatment, health care providers should have a dialogue with the
patient and consider previous experiences and expectations in order to ensure the
patient has balanced expectations of the outcome.

Langue : ANGLAIS

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