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Testing and development of an instrument for self-report of participation and related environmental factors - Your Ideas about Participation and Environment (YIPE) among adults with brain injury

HAWLEY R; MADDEN RH; BRENTNALL J; SERRATORE D; GRANT S; LUFT I; BUNDY A
DISABIL REHABIL , 2016, vol. 38, n° 23, p. 2315-2323
Doc n°: 183324
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2015.1128988
Descripteurs : AF3 - TRAUMATISME CRANIEN, JL - INSERTION ET INCLUSION SOCIALE

PURPOSE: To examine the usability of the self-report instrument, Your Ideas about
Participation and Environment (YIPE), among adults with a brain injury by
exploring the value and acceptability of the instrument. METHODS: A qualitative
descriptive research design was used for the purpose of testing and developing
the YIPE for use among adults with a brain injury. The study involved
administering the YIPE followed by in-depth interviewing about the experience of
taking the instrument with seven adults with a brain injury, recruited through a
community-based support service organization. A descriptive thematic approach was
used to analyse the content of the interview data, categorize common ideas and
identify areas for improvement within the instrument. RESULTS: Participants were
generally positive about the importance of the participation and environment
topics and willing to engage in self report. The YIPE (2012), resulting from
changes made to the language and structure, was found to be more useable, valued
and accepted by these participants than the previous version, YIPE (2011).
CONCLUSIONS: The YIPE was found to be a useful tool among study participants. The
YIPE topics were found to have importance and relevance when considering
participants' satisfaction with areas of life and aspects of environment
requiring change. More development of the tool is required in terms of the
wording, format and method of administration to improve the overall usability of
the instrument. Implications for Rehabilitation The preliminary results from this
small sample study illustrated that people with brain injury were able to use an
International Classification of Functioning, Disability and Health-based tool,
and confirmed the importance of considering both participation and the
environment together.
People with cognitive impairments associated with brain
injury reported on areas of everyday life where they were satisfied or
dissatisfied. They related their satisfaction to environmental factors that were
facilitators or barriers to valued everyday activities. The opportunity to choose
important life areas promotes individuals' motivation to engage and enables
service providers to tailor rehabilitation. In the course of the two stages of
research, it was necessary to make minor modifications to the language, structure
and scoring system of the tool, to simplify the task and shorten the time to
interview participants.

Langue : ANGLAIS

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