Article

The purpose of this study was to describe the meaning of resilience,
factors facilitating resilience and barriers to resilience,
from the perspective
of persons with multiple sclerosis (MS), their care partners and community
stakeholders. Method We conducted four focus groups: two with middle-aged (36-62
years) individuals with MS [one with men (n = 6) and one with women (n = 6)], one
for partners of individuals with MS (n = 11) and one with community stakeholders
serving people with MS (n = 9). We asked participants to describe what resilience
means to them, what factors facilitate resilience and what barriers to resilience
they perceive. We analyzed the focus group transcripts for emerging themes and
sub-themes. Results Participants found it difficult to generate a concise
definition of resilience, but they generated evocative descriptions of the
concept. Psychological adaptation, social connection, life meaning, planning and
physical wellness emerged as facilitators of resilience. Resilience depletion,
negative thoughts and feelings, social limitations, social stigma and physical
fatigue emerged as barriers to resilience. Conclusion The unpredictable nature of
MS can present unique challenges to resilient adjustment, especially during
middle age. However, several factors can contribute to resilience and quality of
life, and these factors are amenable to intervention. Implications for
Rehabilitation Resilience is the capacity to bounce back and thrive when faced
with challenges. People with MS develop resilience through psychological
adaptation, social connection, life meaning, planning ahead and physical
wellness. Barriers to resilience with MS include burnout, negative thoughts and
feelings, social difficulties, stigma and fatigue. Interventions should address
both individual and social factors that support resilience, such as promoting
positive thinking, planning and engagement in meaningful activities.

Langue : ANGLAIS