Article

Purpose To provide a systematic overview of current qualitative systematic
reviews and metasyntheses of patients' and informal carers' experiences with
rehabilitation and life after stroke following discharge.
Method A systematic
literature search was performed based on PRISMA guidelines. Nine databases were
systematically searched by a university librarian. The search yielded 1093 unique
entries and screening by title/abstract identified 60 reviews for potential
inclusion. After full-text assessment by two independent observers, 11 reviews
satisfied the inclusion criteria. Following quality appraisal, four studies were
excluded. Results Seven qualitative reviews (containing 108 primary studies) were
included: five reviews of patients' experiences and two reviews of carers'
experiences. Stroke causes profound disruption of life as known, and both
patients and carers must engage in a process of adapting and rebuilding a
post-stroke life and identity. This process of rehabilitation is described as
temperamental and unstable rather than progressive. From the reviews, five key
experiences in this process are identified: autonomy, uncertainty, engagement,
hope and social relations. Conclusions The need for broad, qualitative syntheses
of stroke patients' experiences is currently fulfilled. Future qualitative
reviews could focus more on implications for practice, e.g., by grading the
quality of the metafindings. Implications for Rehabilitation Stroke is a profound
disruption of life as known, and patients and carers value information that helps
them prepare for and adjust to this new situation. Optimal rehabilitation is a
main concern and goal for patients and carers, and thus carers may be a valuable
asset to professionals in the rehabilitation process. Practical and emotional
support is important for patients and carers, and rehabilitation professionals
should be aware of the increased risk of social isolation post-stroke. Hope is a
strong motivational factor and coping strategy for patients and carers. However,
as hope may wane in the case of continued residual impairment, rehabilitation
professionals should prepare patients and carers for this situation.

Langue : ANGLAIS