Article

The purpose of this study was to explore the experiences of children
with spina bifida (SB), their families and healthcare professionals (HCPs) when
discussing weight-related topics. METHOD: In-depth qualitative interviews were
conducted with HCPs from Canadian outpatient SB clinics
(n = 13), children aged
6-18 years with SB (n = 17)
and their parents (n = 20).
Data were analyzed using
a phenomenological approach within an interpretative paradigm. RESULTS: Many HCPs
were not confident talking about weight, concerned that they would damage
relationships with children and families. Parents wanted routine weight
surveillance, but were worried about their children's self-esteem if their weight
was discussed. They wanted HCPs to acknowledge the challenges of weight
management in children with a physical disability and provide specialized
solutions. Children wanted a positively framed and tailored approach to weight
discussions, although this had generally not been their experience. CONCLUSIONS:
Stakeholders describe therapeutic relationships that are currently disconnected
around the issue of weight and obesity. However, children, parents and HCPs all
believed that discussing this topic was critical. Positively framed,
strengths-based and tailored approaches to weight-related discussions are
warranted. Implications for Rehabilitation Rates of overweight and obesity in
children and youth with physical disabilities are substantially higher than their
typically developing peers. Healthcare professionals, children with physical
disabilities and families often find weight-related discussions challenging and
disconnected. Weight-related discussions should be tailored to the child and
family's circumstances and priorities. Positively framed and strengths-based
approaches to weight-related discussions are warranted.

Langue : ANGLAIS