Article

The majority of people with multiple sclerosis (pwMS) initially present
with discreet periods of relapses followed by partial remission of symptoms
(RRMS). Over time, most pwMS transition to secondary progressive MS (SPMS),
characterized by a gradual accumulation of disability.
This study aimed to
explore the experiences, coping and needs associated with transitioning from RRMS
to SPMS. METHOD: Data were collected via semi-structured interviews with nine
pwMS and seven specialist MS health professionals (HPs). Thematic analysis was
used to analyze the data. RESULTS: Four major themes were identified: "Is this
really happening?"; "Becoming a reality"; "A life of struggle"; and "Brushing
oneself off and moving on." Findings suggested a process of moving from
uncertainty towards confirmation of one's diagnostic label. Being reclassified
with SPMS served as a turning point for many, and was accompanied by a range of
cognitive, emotional and behavioral responses. The value of adequate information
and support surrounding the transition, and the potential benefit of education
and support for health professionals in relation to the transition were
indicated. CONCLUSIONS: Understanding pwMS' experiences of the transition is
essential if clinicians are to provide pwMS with appropriate support during the
transition. Implications for Rehabilitation The timing and delivery of
preparatory education for patients about the transition to SPMS should be
carefully considered. Sufficient information and follow-up support following the
reclassification of SPMS is crucial but sometimes lacking. The importance of
sensitive communication of the reclassification of SPMS was highlighted. MS
Specialist health professionals may potentially benefit from training and support
around communication of the reclassification of SPMS. Given the potential
negative psychological impact of the transition, the psychological wellbeing of
the patients during the transition to SPMS should be monitored and responded to
appropriately.

Langue : ANGLAIS