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The psychological impact of prolonged disorders of consciousness on caregivers : a
systematic review of quantitative studies

SOETERIK SM; CONNOLLY S; PLAYFORD ED; DUPORT S; RIAZI A
CLIN REHABIL , 2017, vol. 31, n° 10, p. 1374-1385
Doc n°: 184973
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1177/0269215517695372
Descripteurs : AD71 - COMA / ETAT VEGETATIF, JL13 - HANDICAP ET FAMILLE, JI - PSYCHOLOGIE ET HANDICAP

Systematic review of the nature, frequency and severity of
psychological experiences of people who have a close relationship with a person
with a prolonged disorder of consciousness. DATA SOURCES: Cochrane Library, Web
of Science, PsycINFO, PubMed, Embase(R), MEDLINE(R), Allied and Complementary
Medicine, were searched from inceptions until December 2016 with additional hand
searching of reference lists of included articles. REVIEW METHODS: Studies were
included that used quantitative methodologies and psychological measures to
investigate experiences.
The PRISMA statement was followed with inclusion
criteria set a priori. A data synthesis summarized psychological constructs
studied. RESULTS: A total of 18 studies (ranging between n = 16-487 participants)
met the inclusion criteria with 15 of 18 studies focused on the primary
caregiver. A total of 23 standardized psychological measures were identified to
assess four primary psychological constructs: Loss and grief, psychological
wellbeing changes, burden and use of coping strategies. CONCLUSIONS: Small sample
sizes, limited variables and reliance on observational methods affected quality.
Caregivers do find ways to manage independently, but some exhibit clinically
significant psychological distress that does not change over time alone and may
get worse.

Langue : ANGLAIS

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