Article

This systematic literature review aimed to (1) summarize and explain the
concept of Burden of Treatment (BoT) using the International Classification of
Functioning, Disability and Health (ICF) terminology, and (2) inform the
development of a future Comprehensive ICF Core Set for BoT. METHOD: Searches on
EMbase, Medline, CINAHL and PsycINFO were conducted. Only qualitative studies
were considered for inclusion. The screening and data extraction stages were
followed by a "Best-fit" framework synthesis and content analysis, using the
established ICF linking rules. Screening, data extraction, quality appraisal and
data analysis were performed by two independent researchers. RESULTS: Seventeen
studies were included in this review. The "Best-fit" framework synthesis
generated 179 subthemes which identified that BoT impacts negatively on body
functions and structures, restricts valued activities and participation and
influences contextual factors through life roles, self-identify and
relationships. The identified subthemes were linked to 77 ICF categories.
CONCLUSIONS: This study is part of the preparatory phase of a Comprehensive ICF
Core Set for BoT and our findings will inform the further needed studies on this
phase. The use of ICF terminology to describe BoT provides an accessible route
for understanding this complex concept, which is pivotal for rethinking clinical
practice. Implications for rehabilitation Health professionals applying the ICF
should consider the negative impact of interventions on patient's life roles and
self-identity, body functions and structures and on valued activities and
participation. Health professionals who may be concerned about the treatment
burden being experienced by their patients can now use the ICF terminology to
discuss this with the multidisciplinary team. Poor adherence to rehabilitation
programs may be explained by an increased BoT. This phenomenon can now be mapped
to the ICF, and coded using a framework well known by multidisciplinary teams.

Langue : ANGLAIS