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Refining the Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO) item candidates : interpretation of a self-reported outcome measure of functional performance by young people with neuro-developmental disabilities

KRAMER JM; SCHWARTZ A
DEV MED CHILD NEUROL , 2017, vol. 59, n° 10, p. 1083-1088
Doc n°: 186071
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1111/dmcn.13482
Descripteurs : AJ112 - PATHOLOGIQUE

This study examined the item interpretability and rating scale use of the
Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO)
by young people with developmental disabilities.
The PEDI-PRO assesses the
functional performance of discrete functional tasks in the context of everyday
life situations. METHOD:
A two-phase cognitive interview design was implemented
with a convenience sample of 37 young people (mean age 19y,
SD 2y 5mo; 13 males
and 24 females; 68% with intellectual disability) with developmental
disabilities. In phase I, 182 item candidates were each reviewed by an average of
four young people. In phase II, 103 items were carried forward or revised and
each reviewed by an average of seven additional young people. Two raters coded
responses for intended item interpretation and performance quality; codes were
analysed using descriptive statistics. Qualitative analysis explored young
people's self-evaluation process. RESULTS: Items were interpreted as intended by
most young people (mean 86%). Young people can use PEDI-PRO response categories
appropriately to describe their performance: 94% of positive performance
descriptions coincided with a positive response category choice; 73% of negative
descriptions coincided with a negative response category choice. Young people
interpreted items in a literal manner, and their self-evaluation incorporated the
use of supports that facilitate functional performance. INTERPRETATION: The
PEDI-PRO's measurement framework appears to support the self-evaluation of
functional performance of young people with developmental disabilities.
CI - (c) 2017 Mac Keith Press.

Langue : ANGLAIS

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