Article

AIM: To systematically review the measurement properties of instruments assessing
participation in young people with autism spectrum disorder (ASD). METHOD: A
search was performed in MEDLINE, PsycINFO, and PubMed combining three constructs
('ASD', 'test of participation', 'measurement properties'). Results were
restricted to articles including people aged 6 to 29 years.
The 2539 identified
articles were independently screened by two reviewers.
For the included articles,
data were extracted using standard forms and their risk of bias was assessed.
RESULTS: Nine studies (8 cross-sectional) met the inclusion criteria, providing
information on seven different instruments. The total sample included 634
participants, with sex available for 600 (males=494; females=106) and age
available for 570, with mean age for these participants 140.58 months (SD=9.11;
range=36-624). Included instruments were the school function assessment,
vocational index, children's assessment of participation and
enjoyment/preferences for activities of children, experience sampling method,
Pediatric Evaluation of Disability Inventory, Computer Adaptive Test, adolescent
and young adult activity card sort, and Patient-Reported Outcomes Measurement
Information System parent-proxy peer relationships. Seven studies assessed
reliability and validity; good properties were reported for half of the
instruments considered. Most studies (n=6) had high risk of bias. Overall the
quality of the evidence for each tool was limited. INTERPRETATION: Validation of
these instruments, or others that comprehensively assess participation, is
needed. Future studies should follow recommended methodological standards. WHAT
THIS PAPER ADDS: Seven instruments have been used to assess participation in
young people with autism. One instrument, with excellent measurement properties
in one study, does not comprehensively assess participation. Studies of three
instruments that incorporate a more comprehensive assessment of participation
have methodological limitations. Overall, limited evidence exists regarding
measurement properties of participation assessments for young people with autism.
CI - (c) 2017 Mac Keith Press.

Langue : ANGLAIS