Article

This study sought to investigate how people with Parkinson's disease
(PD) perceived both the cause and their control of the disease. METHOD: Eleven
people living with a diagnosis of idiopathic PD in the UK were recruited via
Parkinson's disease nurse specialists and interviewed. Interviews were
transcribed verbatim and themes were then extracted from the transcripts using
interpretative phenomenological analysis (IPA). Themes which were well supported
and novel are presented. RESULTS: Three themes are presented. 1) different types
of causal attribution; 2) perceptions of control of symptoms by medication; 3)
the secondary control process of adaptation with particular focus on acceptance
and denial. CONCLUSIONS: Themes of cause and control arose in a number of ways
throughout conversations with participants. The links between cause and control
were not universal but rather occurred in subtle individual ways. Different
strategies were used by participants so that control could be maintained, at
least to some extent. However, a flexible and responsive social and healthcare
system is required to support individuals appropriately.

Langue : ANGLAIS