Article

Content comparison of health-related quality of life (HRQOL) measures is
currently important because of the varying use of concepts and
operationalisations. Our objective was to use the International Classification of
Functioning Children and Youth version (ICF-CY) as a standard by which to compare
the content of all cerebral palsy (CP) disease-specific HRQOL measures. METHODS:
MEDLINE and PsycINFO databases were searched up to September 2008. The content of
HRQOL measures was linked to the ICF-CY by two trained assessors. Agreement was
calculated using kappa (kappa) statistic. RESULTS: Four disease-specific HRQOL
measures were identified. Three generic measures were selected as a content
comparison group. A total of 576 concepts contained in the measures were
identified. Eighty-nine percent (n = 510) were linked to 127 different ICF-CY
categories. Overall kappa agreement was 0.76 (95% CI: 0.75-0.77). Forty percent
of concepts were linked to the activity and participation component. The measures
varied in the number of concepts and the distribution of concepts by ICF-CY
components. CONCLUSIONS: The ICF-CY provided an international accepted,
structured framework for the content comparison of CP-specific and generic HRQOL
measures. The results will provide clinicians and researchers with additional
information, useful when selecting HRQOL measures.

Langue : ANGLAIS