Article

PURPOSE: To investigate the relationship between the level of autonomy and the
quality of performance of everyday activities in a population-based cohort of
children with spina bifida and to study the agreement between the children's and
the parents' ratings of autonomy. METHODS: 50 dyads of children (aged 6-14) with
spina bifida and their parents rated the children's level of autonomy with an
adapted, Swedish version of the Autonomy Scale from the Arc's Self-Determination
Scale. Each child's quality of performance of everyday activities was assessed
with the Assessment of Motor and Process Skills (AMPS). RESULTS: The autonomy
levels of the children with spina bifida were rated to be lowest in daily
routines and highest in leisure activities. Binary logistic regression analyses
revealed that age, motor skills and process skills were all significantly related
to the autonomy level, but that process skills appeared to predominate in this
respect. Concerning the perception of the autonomy level, little agreement was
found between each child and his/her parent. CONCLUSIONS: It is important to
understand and support the development of process skills as expressed in task
performance in children with spina bifida and to pay attention to both the
parent's and the child's opinion when setting goals and plans for interventions.

Langue : ANGLAIS