Article

OBJECTIVES: To develop the International Spinal Cord Injury (SCI) Pulmonary
Function Basic Data Set within the framework of the International SCI Data Sets
in order to facilitate consistent collection and reporting of basic
bronchopulmonary findings in the SCI population. SETTING: International. METHODS:
The SCI Pulmonary Function Data Set was developed by an international working
group. The initial data set document was revised on the basis of suggestions from
members of the Executive Committee of the International SCI Standards and Data
Sets, the International Spinal Cord Society (ISCoS) Executive and Scientific
Committees, American Spinal Injury Association (ASIA) Board, other interested
organizations and societies and individual reviewers. In addition, the data set
was posted for 2 months on ISCoS and ASIA websites for comments. RESULTS: The
final International SCI Pulmonary Function Data Set contains questions on the
pulmonary conditions diagnosed before spinal cord lesion,if available, to be
obtained only once; smoking history; pulmonary complications and conditions after
the spinal cord lesion, which may be collected at any time. These data include
information on pneumonia, asthma, chronic obstructive pulmonary disease and sleep
apnea. Current utilization of ventilator assistance including mechanical
ventilation, diaphragmatic pacing, phrenic nerve stimulation and Bi-level
positive airway pressure can be reported, as well as results from pulmonary
function testing includes: forced vital capacity, forced expiratory volume in one
second and peak expiratory flow. The complete instructions for data collection
and the data sheet itself are freely available on the website of ISCoS
(http://www.iscos.org.uk).

Langue : ANGLAIS