Article

OBJECTIVES: To (1) evaluate perceptions of person-centered care (PCC) in
individuals with traumatic spinal cord injury (SCI); and (2) examine perceived
differences in PCC concepts between patients continuing to receive any services
from a Spinal Cord Injury Model Systems (SCIMS) facility and those who are not.
DESIGN: We used a cross-sectional design, mailed a paper survey, and followed up
with a second mailing to nonrespondents after 4 weeks. SETTING: Community.
PARTICIPANTS: Individuals
(N=326) who received initial rehabilitation at an SCIMS
facility and agreed to participate in this research study. We distinguished
respondents who received any SCIMS outpatient services in the past 2 years (SCIMS
users, n=137) or longer ago (SCIMS nonusers, n=189). INTERVENTIONS: Not
applicable. MAIN OUTCOME MEASURES: Participants completed the Patient Activation
Measure (PAM), the Patient Assessment of Chronic Illness Care, the Global
Practice Experience measure, and 5 Press-Ganey questions that assessed key
elements of patient- and family-centered care. RESULTS:
Patient perspectives of
chronic illness care were more positive in the SCIMS users than nonusers (3.15 vs
2.91, P<.05); the difference is attributable primarily to higher subscale scores
on goal setting and tailoring. The SCIMS users and nonusers did not differ in
terms of PAM overall score or activation stage, Global Practice Experience, or
Press-Ganey scores. CONCLUSIONS: SCIMS users and nonusers differed on perceptions
of chronic illness care (largely the goal-setting and tailoring component), which
were more favorable for Model System users than nonusers. Results can guide
strategies to enhance PCC practices after inpatient rehabilitation.
CI - Copyright (c) 2016 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS