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Perspectives of school-work transitions among youth with spina bifida, their parents and health care providers

LINDSAY S; MCPHERSON AC; MAXWELL J
DISABIL REHABIL , 2017, vol. 39, n° 7, p. 641-652
Doc n°: 184630
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2016.1153161
Descripteurs : AJ22 - SPINA BIFIDA, JJ - SCOLARITE ET HANDICAP

Youth with disabilities encounter many challenges in finding employment
and transitioning to post-secondary education. In this article, we explore the
nature of school-work transitions for youth with spina bifida, which few studies
have previously addressed. Method We conducted in-depth interviews with 44
participants (nine youth and 12 young adults with spina bifida, 11 parents and 12
clinicians). We analyzed our data using a qualitative content analysis approach.
Results We identified several enablers to school-work transitions, including
professional support, social support and school accommodations. Lacking such
support created several challenges for youth with spina bifida. We also
identified several barriers to school-work transitions, including lack of
education and information on finances, housing and transportation; discrimination
and stigma; and challenges coping with spina bifida at school and work.
Conclusions Although some supports are available, youth with spina bifida
encounter many challenges in transitioning to post-secondary education and
employment. With clinicians at the helm, efforts should be put in place within
the health and social services system to better prepare youth, as they transition
to adulthood, to become connected to appropriate information and resources to
help them to succeed in their school and employment goals. Implications for
Rehabilitation Youth with spina bifida encounter many challenges in transitioning
to post-secondary education or work. Clinicians, educators and parents should
continue to support youth with spina bifida in choosing their vocations, setting
career goals and developing career plans. Starting from a young age, parents,
clinicians and educators should help youth with spina bifida prepare for school
work transitions by fostering their independence, life skills and self-management
of spina bifida-related symptoms. Clinicians and educators should help connect
youth with spina bifida to appropriate information and resources to support their
school-work transitions, including information on finances, housing,
transportation, school accommodations and employment supports.

Langue : ANGLAIS

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