Article

Objective:To develop the International Spinal Cord Injury (SCI) Endocrine and
Metabolic Function Basic Data Set within the framework of the International SCI
Data Sets that would facilitate consistent collection and reporting of basic
endocrine and metabolic findings in the SCI
population.Setting:International.Methods:The International SCI Endocrine and
Metabolic Function Data Set was developed by a working group. The initial data
set document was revised on the basis of suggestions from members of the
Executive Committee of the International SCI Standards and Data Sets, the
International Spinal Cord Society (ISCoS) Executive and Scientific Committees,
American Spinal Injury Association (ASIA) Board, other interested organizations
and societies, and individual reviewers. In addition, the data set was posted for
2 months on ISCoS and ASIA websites for comments.Results:The final International
SCI Endocrine and Metabolic Function Data Set contains questions on the endocrine
and metabolic conditions diagnosed before and after spinal cord lesion. If
available, information collected before injury is to be obtained only once,
whereas information after injury may be collected at any time. These data include
information on diabetes mellitus, lipid disorders, osteoporosis, thyroid disease,
adrenal disease, gonadal disease and pituitary disease. The question of gonadal
status includes stage of sexual development and that for females also includes
menopausal status. Data will be collected for body mass index and for the fasting
serum lipid profile. The complete instructions for data collection and the data
sheet itself are freely available on the websites of ISCoS
(http://www.iscos.org.uk) and ASIA (http://www.asia-spinalinjury.org).

Langue : ANGLAIS