Article

OBJECTIVE: To explore the perceived impact of disease-related foot problems and
foot care in juvenile idiopathic arthritis (JIA) from the perspectives of
patients, parents, pediatric rheumatologists, and health professionals. DESIGN: A
qualitative study using an interpretative phenomenological approach. SETTING:
Outpatients department, public health service children's hospital. PARTICIPANTS:
Patients (N=15; 4 adult patients, 2 parents of children with JIA, 3 pediatric
rheumatologists, and 6 health professionals) from 2 National Health Service
rheumatology centers (1 pediatric and 1 adult). INTERVENTIONS: Not applicable.
MAIN OUTCOME MEASURES: Qualitative outcomes were participants' perceptions
elicited using semistructured interviews (telephone or face-to-face) and focus
groups using an interpretative phenomenological approach. A data-driven inductive
approach to coding and theme development was adopted for transcript analysis.
RESULTS: Participants volunteered to take part in a total of 7 interviews and 2
focus groups. The analysis revealed 6 key themes related to the impact of foot
problems and perceptions of foot care from respective groups. These were the
following: (1) pain, (2) mobility impairment, (3) reduced ability to perform
activities of daily living, (4) footwear difficulties, (5) poor referral
pathways/delayed access to care, and (6) lack of evidence in support of
conservative foot care. CONCLUSIONS: Several areas for development of foot care
services were identified including a need for improved referral pathways, shorter
waiting times for initial consultations, greater attention to patient compliance,
and a need for better evidence in support of customized foot orthoses. Several
key foot health-related outcomes were identified, which may be of importance for
measuring therapeutic response to foot-related interventions.
CI - Copyright (c) 2012 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS