Article

The study aimed to investigate comprehensively the determinants of the
quality of life (QOL) of caregivers of children with cerebral palsy (CP) based on
the International Classification of Functioning, Disability and Health for
Children and Youth (ICF-CY). METHODS: A total of 167 children with CP (mean age
9.06 years, SD 2.61 years) and their caregivers (mean age 40.24 years, SD 5.43
years) participated in this study. The QOL of caregivers was measured with the
World Health Organization Quality of Life-BREF-Taiwan version (WHOQOL-BREF-TW).
The potential determinants of QOL were collected, including child characteristics, caregiver characteristics, and environmental factors from all
dimensions of the ICF-CY and analysed using multiple regression models. RESULTS:
Four multiple regression models revealed that determinants of the QOL of
caregivers of children with CP was multidimensional, encompassing child
characteristics (age, type of CP, fine motor impairment, other diseases,
behaviour and emotions, visual impairment, hearing impairment), caregiver
characteristics (general mental health, parenting stress, marital status, family
coping patterns, and socio-economic status), and environmental factors (child's
medication, school setting, and current rehabilitation service, caregiver's
spouse's age, family life impacts, and domestic helper). CONCLUSIONS: Knowledge
of the determinants of QOL could serve as a guide in a holistic approach to
evaluation and intervention and help plan interventions targeted at these
determinants to improve the QOL of caregivers of children with CP. Implications
for Rehabilitation Caregivers of children with CP had lower QOL, except the
environment QOL. The QOL determinants of caregivers of children with CP are
multidimensional, including child characteristics, caregiver characteristics, and
environmental factors. In addition to child characteristics of severity of fine
motor impairments and emotional and behavioural problems, caregiver
characteristics of general mental health, parenting stress, and coping patterns,
and environmental factors of family life impacts, and school setting demonstrated
important relationships with caregiver QOL.
- Aidants

Langue : ANGLAIS